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Wednesday, March
16, 2005 – THE FIGHT OF FLIGHT
We made it to Denver late last night but not without complication. We
are thankful to have arrived safely but what a series of events,
humbling events.
The day started out with my blood oxygen level hitting an all time
low level, yet Bob the Ironman tried to carry on as I normally would for
a trip – packing, slinging suitcases and carry-ons around the house as
we hurried to get ready for our trip. As shortness of breath grabbed
hold of me, I tried to deny it but finally had to give in and sit down
and rest.
We were thankful for Brett Hedgepeth who volunteered to take us to
the airport and for his strength in helping us get our bags to the car.
When Brett dropped us off at the airport curb, rather than hale a
skycap, the old Bob tried to assume his
old role of grabbing as many
bags as possible and rush off to the Southwest Counter. As we entered
the building, the line
was about two blocks long yet we hurried to get a
place at the end of the line. By this time I was extremely short of
breath and my heartrate was sky high. Jan was scared and quite frankly
so was I. I must have looked like death warmed over because Jan took
over and said, "We’re going back out those doors and I’m going
to get a skycap to check our bags and
I’m going to get a wheelchair
for you."
Somehow, I knew she was right so I cooperated. We made it out the
door to the skycap area and was relieved to not only have a very nice
skycap check our bags but provide a wheelchair which Jan used to push me
through security to the gate.
You talk about a humbling experience – being wheeled through the
very airport where you have hurried to make a flight so many times
before, yet realizing you just do not have enough breath to make it to
the gate. I am thankful for a faithful wife who took control and wheeled
me through Orlando International as well as our connection in Chicago
and our destination in Denver.

Jan and
Bob in Orlando International Airport with a Disney reminder that once
Bob is able to run,
he’s going to run the
Disney Marathon with his doctor, Richard Feibelman next January, Lord
willing.
It was also most humbling to wear a surgical mask on the airplane at
the advice of my doctor. I was OK with the looks
after while, realizing
it all had a purpose to keep me from getting any worse from an
infectious disease in the air.
We finally made it to Denver, late Tuesday night and after finding
our way to the hotel Jan and I unloaded things while fighting an even
lower blood oxygen saturation level, pushed even further to the limit by
the thin air.
Today, we are thankful for the opportunity to visit National Jewish
Medical Center later this morning and I’ll post an
update later today.
As yesterday took me down another notch or two I was reminded last
night of the following passage in 1st Peter:
1 Peter
5:6-7 (New Living Translation) So humble yourselves under the mighty
power of God, and in his good time he
will honor you. [7] Give all your
worries and cares to God, for he cares about what happens to you.
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March 16 – THE FIRST DAY
The first day at the National Jewish Medical Center has been filled
with one test after another. There have also been consultations in which
we have been given tons of information about the diseases I have, how to
cope with them, and the treatment of those diseases. In the meantime, I
have been poked a number of times for blood samples, been given an
extensive oxygen test while seated, walking, and recovering, had another
chest X-ray, and talked to nurses, a respiratory therapist, and doctors,
including Dr. Gwen Huitt.
My blood oxygen has been a central focus of much of the testing today
which led to my being linked to an oxygen tube
in the room assigned to
me and to a portable tank while traveling about the hospital. I even
have to spend the night for overnight blood oxygen saturation testing. (We’re
hoping Jan can sleep in the extra bed here for the night!)
In addition to being linked to the oxygen, because of the bacterial
infection in my bronchial tubes and the number of
people with
respiratory ailments in this facility, I have been placed in isolation.
This means every time I leave my room
I have to wear a mask and everyone
who enters my room has to wear a mask. It makes me real aware of the
severity
of the disease I have, although they have assured me it is
precautionary measures for other patients, rather than the
cause for any
contagious concerns.
From the looks of the daily schedule of events, today’s whirlwind
of activities is going to be the norm for my time here
at National
Jewish Medical Center but I am thankful to be here. With every
consultation about the severity of my
problems, there has been the
assurance that I have come to the right place and the goal is to get me
back to as normal
life as possible.
The people here are most positive and helpful.
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March 17, 2005
– "STARTING FROM THE BOTTOM"
Today began in the hospital (National Jewish Medical Center) where we
spent the night so my overnight blood oxygen saturation could be
checked. As was suspected, my levels drop enough at night that I will
need oxygen at night for the duration of my recovery and maybe at other
times through the day.
Since I was placed on oxygen yesterday to help adapt to the higher
altitude and thinner air, I found a new respect for
people who carry
their oxygen tanks as they go through life. Jan and I got the look as we
went out to eat last night
before heading back to the hospital, where
thankfully they allowed Jan to spend the night with me.
After awakened at the completion of the test, another full day of
activity and information began. It started with a CT
scan of my chest, a
meeting with Dr. Huitt and a team of other doctors who are here to learn
from her, a strength test
with a physical therapist, a treadmill test, a
hearing test (because the antibiotics can cause a hearing loss), a
consultation with an occupational therapist, respiratory therapy, an
insertion of a PIC line, a pulmonary function test,
and two IV
treatments.
The time with Dr. Huitt and the team of doctors was most enlightening
but frightening because we were made to realize
how close to the edge I
had gone. Dr. Huitt carefully described my condition, using the CT scan
taken moments earlier,
to show us the advanced bronchiectasis and
bacterial infection effects on my airways. It was as clear as day that
left
alone, I was loosing more and airway space and I have blessed to
just be alive. We were thankful that Dr. Feibelman
had both caught my
condition last summer and recommend as well as helped me get into
National Jewish Medical
Center.
Dr. Huitt has recommended some very aggressive antibiotics via IV
which required the PIC line be inserted into my
arm and travel to my
chest. She pointed out that things I can do via respiratory therapy to
help my situation. Although
we felt like we hit the bottom when we heard
the severity of my condition, we have seen it as the first step toward
recovery. Every nurse, therapist, doctor, and employee seem to be
God-sends in their constant positive attitude
and encouragement.
We felt like Paul described in 2nd Corinthians chapter
four when he described being cast down but not destroyed,
as one
translation put it.
2 Corinthians 4:7-10 (NLT) But this precious treasure—this light
and power that now shine within us—is held in
perishable containers,
that is, in our weak bodies. So everyone can see that our glorious power
is from God and is
not our own. [8] We are pressed on every side by
troubles, but we are not crushed and broken. We are perplexed,
but we
don't give up and quit. [9] We are hunted down, but God never abandons
us. We get knocked down, but we
get up again and keep going. [10]
Through suffering, these bodies of ours constantly share in the death of
Jesus so
that the life of Jesus may also be seen in our bodies.
We are not destroyed, although we were cast down for a brief moment
when we heard the truth of my condition in
details. But as it seemed
hopeless and overpowering, we felt encouraged by the knowledge,
confidence, and attitude
of Dr. Huitt and the others. God is gracious to
help us quickly out of the pit.
Meanwhile, the rest of the day was the beginning of the
implementation of Dr. Huitt’s plan and my adjusting to
making a long
but slow comeback – one step at a time.
One of the hardest things about the plan is the need for me to be
"at the hospital" for IV antibiotic treatment three
times a
day – 6:00 a.m. / 2:00 p.m. & 10:00 p.m. – even on the weekends.
That will mean the things that Jan and I
wanted to do and see in
Colorado when we had time off will not likely take place. I hope we can
do something because
Jan deserves a break. She hangs in with me through
every appointment and is constantly making things better for me
and as
she always does – for people around her.
"The purpose of
this trip is to focus on your healing, that in turn benefits me."
- Jan
You can tell who are the Floridians here in Denver. Jan is wearing
three layers of clothes - even in the hospital
while the locals are
running around in shirt sleeves.
My apologies for not answering emails, for some reason I am having
some difficulty with the SMTP connection in
Outlook Express. We can
receive email and I can send up my updates to the website, it’s just
the sending emails has
been non-cooperative. Thanks for understanding
and for your encouragement and prayer on our behalf. God has been
good.
Although TODAY was a dip to the bottom, we have begun our climb to
recovery and I’m looking forward to the
Disney Marathon and
celebrating with Dr. Feibelman, Bruce Penn, Jan, and a host of other
people.
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March 18, 2005 – "WORK IN PROGRESS"
The words of Dr. Gwen Huitt as we met with her and the team of doctors this
morning concerning my case were, "You are a
work in progress" meaning
they are working to uncover everything that has anything to do with my ailments
and the treatment
that is necessary. She said she will be presenting my case to
another team of doctors and bringing in an additional pulmonary
specialist to
review my case next week. It’s comforting to know that the goal is not to just
get treatments started but to leave no
stone unturned to make sure that
everything that could be a factor is taken under consideration. Jan and I have
appreciated the
thoroughness from the beginning even though it meant another
full day of flurried activity. (Speaking of flurries – it just happens
to be
snowing in the form of flurries outside our window as I write this update.)
As we considered the words of Dr. Huitt this morning, it’s only fitting
that she said that I was a "work in progress" because we
know that God
considers us all a work in progress and His work in us will continue.
Philippians 1:6 (The Message) There has
never been the slightest doubt in my mind that the God who started this great
work in you would keep at it and bring it to a flourishing finish on the very
day Christ Jesus appears.
His work of bringing healing continued today in the form of treatments,
meetings, and tests. It began with our 6:00 a.m. IV
antibiotic treatment and
included two barium swallow tests, a CT scan of my sinuses, a meeting with a
steroid specialist
(he’s a Gator fan!) to discuss the long term use of
steroids to treat my illnesses – the good it brings and the negative side
effects,
a meeting with the physical trainer outlining a beginning training
regimen while under treatment here in Denver, and meetings with
the team of
doctors – and of course the additional daily IV treatments at 10:00 a.m., 2:00
p.m., and 10:00 p.m. WHEW!
(Those of you who know us, know that Jan and I are
early to bed people so this staying up to go to the hospital for
an IV
treatment, arrive home late, and get up early-thirty to make it back to the
hotel for a 6:00 a.m. IV treatment
can understand this is a real challenge for
the two
of us.)
Dr. Huitt pointed out when Jan and I expressed how "worn out" we
felt, that people often come here with the thought of it being
a vacation,
thinking they will spend a little time at this facility and sight see and take
advantage of being in the Denver area.
However, as she said, it’s more like
BOOT CAMP because of the plethora of checkups, tests, consultations,
explanations, and
treatments. We are learning this is no vacation so we are
thankful the work in progress is focused, as we are, on my leaving here
better
than when I came here, which we believe is and will be happening more and more
each day.
Thank you for praying and for all of your encouragement. Hopefully, I will
get the sending email problem worked out so we can
answer emails and send out
the PowerBreak on Monday – if not we’ll catch up on things when we return
3/30.
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March 19, 2005
– A MOMENT OF REFRESHMENT
This morning Jan and I went to National Jewish Medical Center
for my morning IV treatment (6:00 a.m.) and the
morning nurse presented us with
an offer that we couldn’t refuse. She said the 10:00 a.m. IV, which is a
different
antibiotic could be infused after the first one, which would mean our
staying a little longer but not having to return
until the 2:00 p.m. infusion.
Guess which we chose?
Whoo-ahh!! We felt free! After the infusion, we immediately
went home and grabbed a quick bite to eat and headed to Boulder. We chose
Boulder because of our time constraint and from the many things we were told to
see in Boulder.
So off we went to Boulder. WOW! The breathtaking view was
awesome. God gave us some breathtaking views of His creation.
We decided to head to Boulder Falls because we heard the view
was inspiring. As we headed up the mountain, I
couldn’t help but think of
David’s sense of God’s protection and care in Psalm 121. In fact, the Psalm
kept going
over in my mind.
Psalm 121:1-8 (New Living Translation)
I look up to the mountains— does my help come from there? [2] My help comes
from the Lord, who made the heavens and the earth! [3] He will not let you
stumble and fall; the one who watches over you will
not sleep. [4] Indeed, he
who watches over Israel never tires and never sleeps.[5] The Lord himself
watches over you! The Lord
stands beside you as your protective shade. [6] The
sun will not hurt you by day, nor the moon at night. [7] The Lord keeps you
from
all evil and preserves your life. [8] The Lord keeps watch over you as you come
and go, both now and forever.
How could you not think of that
Psalm when you see pictures like these?

A view from a distance at Boulder Falls.

A "Boulder" View
It was a different challenge for Jan and me. First, I was
carrying my oxygen tank over my shoulder, and had to keep cranking up
the volume
as I grew shorter of breath. Secondly, Jan who is scared to death of slipping on
the ice was leading me – normally I
would take the lead and make sure she didn’t
fall, however, this time she was assuming the lead up the pass, doing her best
to
make sure I didn’t slip. We made it about a third of the way and I was worn
out as was she, although she being the
Total Sculpt leader didn’t let on. When
we paused to set up one of our "self portraits," where I hold the
camera with one hand
as my arm is extended, Jan’s camera battery ran out and
the camera wouldn’t work. So we carefully headed back to the car,
recovered,
and went back into Boulder.
As we regrouped and planned our next Boulder activity in the
Starbuck’s Café inside the Super Target, where we purchased
a new camera
battery – we noticed a bike shop having a giant tent sale in the shopping area
next to Target. Even though it would
mean a bit of embarrassment on my part, (I
felt as though I needed to explain the oxygen along with my slow pace while
wearing
the only jacket I brought which is an Ironman Finishers jacket) we
decided it would do some good and be a ray of hope –
WHICH IT WAS. Even though
for a while this past week I wondered if I would ever make it back to the
running & racing
community, God opened this little activity for us to feel
the urge to push the limit again. AND IT FELT GOOD. I don’t know
how soon and
I know it’s a long road to come back from the very sick state that I am in but
I know I want to come back and
plan to be back – SOMEHOW.
God knew we needed some inspiration and He blessed us with a
great morning of enjoying Boulder and we plan to return to see
more of His
creation in Boulder and other areas as our "brief" moments away from
the hospital and IV treatments and or tests arise.
It was also wonderful to be OUTSIDE for awhile today! We had
become sun-light deficient because we’re at the hospital early
(it’s dark)
and get home late when it’s dark.
We’re thankful it was a sunny day today!
This afternoon while taking the IV antibiotic infusion, we
were blessed with another surprise. Dr. Carol-Lynn Petronaci, who is
one of the
infectious disease specialists and a follower of Jesus Christ, popped in to see
how we were doing. She wanted to pick
up the PowerBreak monthly devotional book
that Jan promised her. The 3 of us decided to attend a local church together in
the
morning and get a bite to eat afterwards. It was another great encouraging
moment.
Looking back over the week, we felt like we hit the bottom,
further than we had ever been before but we have begun the ascent
to recovery.
Along the way God has provided encouragement on every hand … from the many
emails we receive on a daily basis
(I still can’t figure out this SMTP thing
that keeps rejecting and not allowing me to respond), to the many people
associated with
the National Jewish Center that are so positive and supportive,
to the fantastic views of God’s magnificent creation, to the little
things
that God has allowed us to enjoy like today’s quick trip to Boulder. God is
good!
Thank you for praying and for the multitude of encouragement.
I wish all of you could see the little book that Marguerite
McNeill assembled and presented to me on my birthday. Marguerite
(CDC Director)
interviewed each child from the Child Development Center and asked them to pray
for Pastor Bob and she
wrote down their words. Michelle Lyons & Mary Anne
Hutcheson (CDC Moms who are professional photographers) took
the photos which were set next to the words of each child. How precious! Or as one person who saw
the book said, "You can’t
look at that without a box of tissues."
Jan and I look at that book everyday. When we need some encouragement we think
of
those children as well as hundred of other children and adults, many we don’t
know, who are praying for us and we are as
enthralled as we were this morning as
we looked up at the magnificent mountains of Boulder.
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March 20, 2005 – "IT’S BEEN A GOOD DAY"
We are thankful that amidst the regular IV Treatments we were
blessed with a good day of activities and encouragement. We
started the day
after the morning IV treatments meeting Dr. Carol-Lynn Petranosi at a local
church worship service. We stopped
for breakfast after the worship service and
spent some time getting to know Dr. Petranosi. What an interesting person who is
not
only passionate about her work but compassionate when it comes to dealing
with patients. It was really interesting to hear of her
medical mission work and
her desire to return. Jan and I found the time very relaxing and encouraging to
hear of the faith of
another person who is trusting God as she works on my case.

Bob and Jan with
Dr. Carol-Lynn Petronaci
After our afternoon IV treatment we spent a few relaxing
moments before we went out for a bite to eat. At the restaurant we ran
into a
fellow triathlete who was quite interested to find out why a person wearing an
Ironman finishers jacket was walking about
with an oxygen tank. As we shared our
stories, we instantly had a unique connection. Jan and I have found it most
fascinating on
this trip how God has placed distinctive people in our path.
Looking back on the day, as we prepare to head to the hospital
for another treatment, we both agreed, "It’s been a good day."
By the way, the overnight
nurse that "let us out early" was Adella who
happens to be Hawaiian.
How cool is that? "SHAKA!"

Thanks for your prayers and encouraging words. We look forward
to reading our emails daily.
========================
PLEASE NOTE: Due to our emailing "on the
road" problems, the Weekly PowerBreak which is
sent to subscribers via
email on Mondays is not being sent 3/21 or 3/28. It is available on the
PowerBreak website: www.powerbreak.org
- where you can subscribe. We hop to get back to emailing the weekly articles on
April 4th. Thank you for understanding.
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March 21, 2005 –
"WHAT IF…"
Today was a very full day of activities and I do mean full day from 6:00 a.m.
until 6:00 p.m.. We began with our early morning
infusions of antibiotics at
6:00 a.m. followed by a series of three blood test throughout the day
determining the way prednisone
is metabolized by my body and how much I should
really be taking. Later we met with a nutritionist; I had another treadmill
workout, a bone density test, a meeting with a pulmonary specialist, a skin
"prick" test for various allergens, and a meeting with
an ear, nose, and throat doctor.

The "Bubbly
Bulgarian Boss" – Veronika, who has the job of making sure
I make all my many appointments,
get all my treatments, watch all the
informative videos about my conditions and procedures, and makes sure I read all
the many handouts. – Whew! She has a tough job.
In the midst of running here and there through the National Jewish Medical
Center, we met with Dr. Gwen Huitt and other doctors
to discuss how things were
going in the diagnosis and treatment of all the things I seem to have ailing me.
We learn more in these
daily briefings than we can hardly absorb but it is so
good to sit down with the doctors and nurses and hear about things from
their perspective and be able to ask questions.. In the midst of the conversation
today after describing the way my body is not
absorbing oxygen like is should,
particularly when I strain it – viz. training and racing, Dr. Huitt asked me,
"What if you can’t run
again? What if you can’t train or race
again?" Thankfully, she was quick to point out that she has a tendency to
point the way to
the most negative news so we aren’t taken by surprise and
that her pointing to that does not necessarily mean that’s where we are
but we
should be ready for the worse case scenario. "What if…"
As I pondered that question, I thought of how this very scenario had gone
through my mind on the way to the NJMC this
morning and how it would require a
stretch way out of my comfort zone to live a life without running, cycling,
swimming –
training and racing. As I thought of it I thought of the constant
tension that someone like me faces from well meaning people.
It seems we are
bombarded by people who on one hand tell us to just have faith and plan on a
comeback – to not give in to
the negative by even thinking anything less than
a return. On the other hand, there are those who seem to want to throw water
on
the fire of faith, who remind me to be a realist, that things will never be the
same and I should make other plans. It’s a real
tension because the voices are
strong on both sides and very insistent on that one voice being the only way to
look at things.
So what if… What if I can’t run because the oxygen saturation debt that
it leaves me is too dangerous for my heart, brain,
and other organs to endure?
What if I can’t race again – even the Disney Marathon, which I was counting
on doing as a sign
of my return? What if… (The list goes on because the
lifestyle of training and fitness to which I have subscribed for most of
my life
is a part of me – of who I am.) So to consider what if is Bob Brubaker
considering what life would be like without a
major part of who I am. (I realize only people who participate in athletics could understand what I just said but
it's part of who
God made me to be and a very important part of my life.) Whoa!
This is heavy stuff.
Does this mean that I have given into the devil and am allowing the disease
to have control and I am less of a Christian? I
don’t think so as I am
comforted by the words of Paul who asked God three times to take away his thorn
in the flesh,
which we don't know what it was exactly - we just know it was
something strong enough in Paul's life that he asked God to
take it away, three
different times.
2 Corinthians 12:7-10 (NIV) To keep me from
becoming conceited because of these surpassingly great revelations, there
was
given me a thorn in my flesh, a messenger of Satan, to torment me. [8] Three
times I pleaded with the Lord to take it away
from me. [9] But he said to me,
"My grace is sufficient for you, for my power is made perfect in
weakness." Therefore I will
boast all the more gladly about my weaknesses,
so that Christ's power may rest on me. [10] That is why, for Christ's sake, I
delight in weaknesses, in insults, in hardships, in persecutions, in
difficulties. For when I am weak, then I am strong.
What if… The more I think of it, the harder it looks to abide by the
counsel of my doctor who is saying at this point: until
we make some significant
progress on fighting the vast amounts of infection and inflammation in my body,
until my body
shows signs of absorbing oxygen at a higher level – training and
racing will be out of the question.
So what will I do when I
return home and can’t train?
I am trying to think and plan for adapting to life without my rigorous
training schedule, while I also ask God to intervene to
bring the wisdom to the
doctors and results I need to get a handle on the diseases plaguing my body so I
can return to a life
of training and racing again which means I am also planning
on a slow but steady comeback, as God allows.
Therein lies the tension. I am asking, along with literally thousands of you
that I will be healed physically. (Which we so
much appreciate your prayers on
our behalf. Please don't stop.) As I pray, I know God is healing me spiritually
and emotionally
as He prepares me for whatever lies ahead and part of that is
the faith to count on Him providing all the grace I’ll need to stretch
out of my comfort zone to either make a comeback or live a new kind of lifestyle.
Jan and I are made more aware on a daily basis of the length of this journey.
The length of this journey to recovery has seemed
to grow more everyday,
although it's more like the awareness the problems as they uncover more about
the diseases that have
a hold on me, than things getting worse. We are thankful
to be here and under great care of Dr. Huitt, Dr. Petronaci, and really
good
doctors, nurses, therapists, etc. We are also thankful for the encouragement,
prayer, concern, and help in which so many
have reached out to us in this hour
of great need. Most of all we are thankful to the Great Physician who has all
this under His
control and will provide what is needed at the right time.
In the midst of pondering the "what if" question, I met with
another pulmonary doctor, Mike Fessler, who is to perform my
bronchoscopy on
Wednesday. Dr. Fessler is a cyclist and expressed great empathy for my
situation. He also described the
severity of my problems and the possibilities
of other testing including a surgical biopsy of the lung. It was great to
exchange
cycling stories and just feel like someone really connected with my
desire to train and race again. Dr. Fessler expressed great
hope for finding and
treating my condition which was wonderful to hear.
So we went through both ends of the spectrum today. It made us realize more
than ever that we are not in control but God
is and whatever the outcome, He
will provide the grace needed to stretch to adapt. Either way, He is the
Sovereign Lord and
caring Father.
On another note, Dr. Petronaci, stopped in to show us pictures from one of her
trips to Africa on a medical missions trip and it
was great to see the pictures
and see the passion and compassion in her eyes as she related the great joy she
experienced in
serving God through her medical services. Just another great way
God has set people in our path at the right time for
encouragement, strength,
and help.
Thanks again for praying.
==============================
March 22, 2005 – "YOU GOTTA LAUGH & A SERIOUS NOTE"
In the midst of the seriousness of the matter for which we
have come to NJMC, there are times we have had to
just laugh at me and my
adaptation to the circumstances of living on oxygen and being in isolation. (The
isolation
label is due to the pseudomonis bacterial infection in my airways.
Isolation means that I am required to wear a mask
at all times inside NJMC or if
I’m in a test or consultation where I need to take off my mask - my doctor,
nurse,
therapist, or other caregiver is required to wear a mask.) Looking back
over the past week, there have been some
scenes that just made us laugh, which
is not all bad since God says that laughing is good medicine and I can use all
I
can get.
Proverbs 17:22 (New Living Translation) A
cheerful heart is good medicine, but a broken spirit saps a person's strength.

"Merry Mary" who is my
morning nurse and quite concerned about my vital signs each day.
She takes her
job very seriously and is especially concerned about my blood oxygen level.
However, she is always good to bring morning cheer and to share laughter.
Since I am tethered to an oxygen tank or to oxygen from the
wall, I have the plastic tubing that runs around my ears and
under my nose.
Since I am required to have this oxygen 24-7 I have gone from being very self
conscience and ashamed
from having to wear it to forgetting it’s there. I
constantly find myself stepping on the line, which as you can imagine, just
about pulls my ears off. I have closed the door on the line and I have tried to
walk away from the portable unit, only to be
brought back by the stretched out
line. All of the above scenes have caused us a moment of laughter. (I guess
you’d
have to be here to appreciate it.) It makes us thankful that God has
brought us from "the shame of it all" to "finding a
reason to
laugh" in the situation.

Of course, there is nothing lighthearted about the situation I
am in, nor my condition but being blessed to make the
most of it, including a
bit of laughter is good for us and for those who are dedicated caregivers here
at NJMC.
On
a serious note…
The doctors need a breakthrough on my illnesses. I am
scheduled for a bronchoscopy in the morning (Wednesday).
This will be my fifth
bronchoscopy. Dr. Feibelman said I should tell them I’m happy to assist them
since I have been
through it so many times before. In addition to clearing out
my airways, Dr. Fessler will be looking for reason for the
inflammation and vast
amounts of infection in my airway and lungs. He has prepared us for the fact
that if they don’t
find answers in the bronchoscopy that I will need to have a
surgical biopsy to give them a sampling of my lung tissue.
It’s been
comforting to hear of the many doctors that have been brought in on my case to
help Dr. Huitt get a handle
on what is causing my problem so they can treat the
cause and not just the symptoms – viz. infection and inflammation
which are
cutting off my airways and keeping my body from absorbing oxygen at the needed
level. So far everything
that has come to be the cause has not passed the test
to indicate that is the problem. Meanwhile my condition continues
to be about
the same, although in some ways it’s worse. So the doctors are working
diligently to find the root of the
problem.
Please pray for a breakthrough for the doctors. They are
seeking for answers and we know God can provide them with wisdom for He is the
source of all wisdom.
Psalm 104:24 (New Living Translation) O Lord,
what a variety of things you have made! In wisdom you have made them all. The
earth is full of your creatures.
Romans 11:33 (NLT) Oh, what a wonderful God we
have! How great are his riches and wisdom and knowledge! How impossible it is
for us to understand his decisions and his methods!
Dr. Huitt talked with Jan and me about the seriousness of my
situation and about some possibilities and the focus of diagnosis and treatment.
She talked of the confusing signs my body is giving to them and different things
they want to do
as they focus on areas of concern that could lead to conclusions
in cause and therefore treatment. Some of the things of which she spoke are
going to be very challenging for Jan and me, along with the doctors. As Dr.
Huitt explained, "In order
to find the root of my problems and work on
getting me better they are going to have to make me very sick."

Dr. Huitt and Bob in his room.
(Dr. Huitt lowered her mask for the picture, otherwise she was
required to keep the mask on
during my isolation)
It seems the large amount of prednisone that I have been
taking may be masking a problem so they want to wean me from the prednisone
(which they have to due to avoid kidney failure) and take a lung biopsy
(hopefully prednisone free that will give some indication of the basis of my
problems.) This is a hard decision – not about whether to go through with the
process but the logistics of how Jan and I are going to work through the
process. There are jobs, finances, airline tickets, hotel, car rental, etc.
along with all the stuff back home. The hard part of all this is the uncertainty
of time, much of which will be determined by how fast I come off the prednisone,
which should certainly mean I’ll be very sick because the prednisone, as
designed has been keeping my body from being more sick than it is. Even though I
have been on prednisone my lung functions are continuing to deteriorate which is
the cause for the alarm to move quickly on doing something radical as soon as
possible.
The bottom line is this process could take from two to four
weeks. Obviously, we don’t feel we have the luxury of coming home next week
and thinking about it. Dr. Huitt does not know whether I’d make it for very
long since my condition is on a downward slide. We are considering having Jan
fly home and come back when it looks like the prednisone is almost out of my
system and I’ll really need her support when I hit the bottom physically, go
through the lung surgery, and hopefully begin treatment to my recovery.
Otherwise, I’ll be waiting, taking daily IV treatments, and going through
other tests that might be recommended. While Jan is not with me, I will stay at
the hospital.
Obviously, we are looking at some huge decisions on how we are
going to handle this. We are thankful for all the support we have received from
so many people. Never could we even begin to thank you enough for your prayers,
your encouragement, and your support in all ways – financially and many more.
This entire ordeal has grown to proportions we can’t
believe. Today went from meeting with people to help us think through how I was
going to deal with a major lifestyle change with oxygen and IV’s to meeting
with Dr. Huitt and getting the news of the need for a radical attempt to get to
the bottom of things.
So there we are – good news in things we have found to be
funny to today’s step back as we look at a foggy future.
We know our lives are in God’s hands so we are looking to
Him for help, wisdom, and healing.
Psalm 66:9 (NLT) Our lives are in his hands,
and he keeps our feet from stumbling.
Thank you for praying and for your support.
=========================
March 23, 2005 – IT’S BEEN A ROUGH DAY
The bronchoscopy was a little more complicated today than the
previous four I had. They sprayed salt water in my lungs and sucked it back out
to take samples of lung tissue and they took a lung biopsy. Both procedures have
sent signals to my brain which caused me to be very sick – fever and all. Once
I got back to my room, I had only a short time before I had to be shuttled to
University Hospital for an echo cardiogram. Once returned, I was worn out.
Dr. Huitt wants me to spend the night here at NJMC for
observation because of the fever and extremely low blood oxygen saturation
level. It’s a normal thing after today’s bronchoscopy procedures so I am
staying here but Jan is not allowed. L
In between today’s procedures, Dr.Huitt and Dr. Petronaci,stopped in to go over the plan for the future. The first is the weaning off the
prednisone which needs to be nearly out of my system for the surgical lung
biopsy. This procedure is expected to make me extremely sick. The second is a
redo of my sinus surgery which will include the repair of the deviated septum
this time (breaking my nose). This surgery is scheduled for Friday, April 1st.
In the meantime, I’ll be taking the antiobiotics via IV as we have and once
the predisone slide begins I’ll have to stay at the hospital for observation.
As we said in yesterday’s update – this has really taken
us by surprise but we don’t feel we have any other choices than to follow the
counsel of my doctors. It will mean a longer stay here in Denver and some
extremely painful situations that will no doubt include difficulty breathing.
Thank you for praying today. It’s been a rough day but God
has seen us through and we are thankful.
Nahum 1:7 (NLT) The Lord is good. When trouble
comes, he is a strong refuge. And he knows everyone who trusts in him.
I can't thank Jan enough for standing by me. I have never felt
so weak and helpless as I have today. When we went to University Hospital I
could hardly walk for lack of oxygen and strength but she stayed with me to help
me and look out for me as she always does. I am so thankful for her support and
thank God for her. Please pray for Jan that she would have strength and we would
have wisdom as we make some critical decisions about the upcoming weeks.
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