April 14-16 UPDATES
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April 14, 2005 – THE TUBE IS GONE
After much deliberation, consultation, and meeting of the minds, an
"OK" was given to remove the chest
tube. No sooner had
everyone assembled in my room for the ceremony of the removal of the
tube, when
Jan picked up her camera to find the batteries were dead so
she ran to the gift shop and back in record
time with a new set of
batteries.

Meanwhile, Dr. Derek Linderman, the now famous doc who saved my life
by inserting the chest tube
a week ago and Dr. Ben Heavrin prepared me
for the "pulling of the tube."

After a few stitches were snipped it was a matter of Dr. Linderman’s
pulling out the tube, once I had
taken a deep breath and hummed. The
next thing I knew – it was out.

You mean that long
thing was in my side?

Dr. Linderman and Dr. Heavener made sure everything
was fine.
We have been thankful for the great nursing care we
have received while here
in the ICU of University Hospital.

Mary Ann, our daytime nurse the
past few days has been a good source of encouragement.

Kim, our night time nurse
during the first couple of nights made a big difference during
a
critical time.

"Cat" is my
physical therapist at University Hospital, making sure I did not
become
a "couch potato" during my stay in ICU, of course it's hard to
keep
the Michelin Man down.
Thank you for praying with us through this long ordeal
at University Hospital. We are currently awaiting
word to go back to
NJMC but in the meantime, have much for which to thank the Lord.
Psalm 40:1 (NLT) I waited patiently for the Lord to help me,
and he turned to me and heard my cry.
Psalm 116:1 (NLT) I love the Lord because he hears and answers my prayers.
Thank you for praying with us and for us. God has been good -- ALL THE
TIME.
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April 15, 2005 – "WE’RE
BACK!"
It took a while but we are thankful that everything fell into place,
the doctors were satisfied with the stability
of my lung that had collapsed and gave us a release about noon from the
University Hospital ICU. It was a
bitter-sweet occasion. We were glad to be free but were sad to leave so
many new friends.

Bob and one of the attending
physicians, "Dr. Mike"

Nothing like having a doctor
who is ready to act as "goofy" as the "Michelin Man"
Returning to National Jewish Medical Center was like coming home to
friends. The nurses had everything ready
for us and made us feel like we had made a great return. We were thankful
for this first stage on our return to
our real home. We’ve been amazed at the countless blessings we have
enjoyed in the midst of a very difficult
valley experience. My Uncle, Robert Russell sent and email today and
shared some scripture that he felt would
be a great encouragement. (Right on Uncle Bob!)
Ephesians 3:19-21 (NLT) May you experience the love of Christ, though
it is so great you will never fully
understand it. Then you will be filled with the fullness of life and power
that comes from God. [20] Now glory
be to God! By his mighty power at work within us, he is able to accomplish
infinitely more than we would
ever dare to ask or hope. [21] May he be given glory in the church and in
Christ Jesus forever and ever through endless ages. Amen.
Speaking of my uncle,
his daughter, my cousin Lois and her son, Caleb
stopped by University Hospital to visit us yesterday.

As we rest up from the ICU / lung collapse / "Michelin Man"
experience, we are thankful the team of doctors
here at NJMC is still processing the lung biopsy and will be working with
us next week on a treatment plan.
Please continue to pray for wisdom and a "break-through" for the
doctors. As Dr. Huitt just assured us that
the best people are "on this case" and are covering everything
possible as they look for the break through
that we all long for so much.
Jan and I are tentatively planning on leaving here on Wednesday. Of
course, there is nothing concrete on
that date, just a hope and determination. We have decided to make the most
of the time "together" as we
drive home. The doctors have concluded flying home would be too dangerous
and although we have had
several offers to fly out here and drive us back home, we believe the time
together away from a hospital
and an opportunity to take in a few sights along the way – since we
missed out on so many in the Denver
area would do us good. We appreciate the thoughtfulness and will
appreciate your prayers as we try to
build up in strength and rest in preparation for next week’s journey.
Thank you for your prayers, your emails, your concern, and your love.
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April 16, 2005 – "PLANS, NEWS,
AND CHANGE"
It’s amazing how we make our plans and God gives direction that often
is different from what we plan but
is for our best.
Jeremiah 29:11 (NIV) For I know the plans I have for you,"
declares the Lord, "plans to prosper you and
not to harm you, plans to give you hope and a future.
It seemed we had things all planned out as of last night after our
return from University Hospital ICU to
the NJMC. We met with Dr. Chuck Daley who was glad to have us back at NJMC
and said that he along
with Dr. Scott Worthen would be working at finding a solution to my
problems from the lung biopsy.
Although he gave us some good insight into what was happening, we almost
felt like we were going home
without the answers for which we were looking and going home feeling much
worse than I did when I
arrived on March 15th. That is not to say we are disappointed
with any of the work of the National Jewish
Medical Center. On the contrary, we have been thankful for the thorough
way which my case has been
handled – we are just disappointed that there has not been conclusive
evidence about any one direction.
Based on that we had concluded the best way to travel home would be to
leave on Wednesday which would
be the soonest we could have all the oxygen stops arranged between Denver
and Orlando and we would
rent a car and drive just taking our time. That may still be the case but
this morning after meeting with
Dr. Scott Worthen we have had a somewhat different perspective on things.
We were greatly encouraged by a meeting this morning with Dr. Scott
Worthen who has taken on my case.
He has spent days studying the slides from my biopsy and talked with us at
great length about what he feels
is behind all the symptoms I have. He said that I have all the indication
of having a rare disease called
"Diffuse Pan Bronchialitis." Focusing on this disease as the
root of the problem gives him some direction
regarding treatment. Although the treatment will be a long journey, Dr.
Worthen presented some hope of
getting things under control as he has seen success in the treatment of
others with this disease. He also said
that he wanted to base a decision on our traveling home by car or plane on
a CT scan later in the week to
show whether my lung could handle the flight or not. He thinks I should be
able to fly home safely later in
the week (if the CT scan shows there is no extra air in the lung/chest
wall area) plus he wants me to be here
through the first regimen of treatment.

Bob and Dr. Worthen who is not
only a great scientist but also a caring doctor.
So here we go again, trying to get ahead by making our plans but we
must be ready to change according
to God’s leading.
We have been praying and know you have been praying that the doctors
would get some clear direction.
As Dr. Worthen explained his thought process, his work, and his
conclusions, we sensed an answer to prayer
and that God was in this matter

Thank you for continuing to pray.
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